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"Life is a shipwreck, but we must not forget to sing in the lifeboats."   - Voltaire.

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Trigeminal Neuralgia - "The Suicide Disease"

http://www.youtube.com/watch?v=88P-97H7qdg


**Edit  - I just wanted to mention that I had an "MVD" aka  "Microvascular Decompression" in June 2009.  It failed, as it often does with atypical patients.   But, I'm still waiting for the results of my July 2009 neurosurgery, "Partial Sensory Rhizotomy of the Trigeminal Nerve".

Trigeminal Neuralgia On The News

 Lyn Bailey

Lyn Bailey Referencing Sheri's post below re UK TV3, it's excellent that TN is being both recognized & reported on finally. Here is yet another news report which again is clear, concise & showcases a patient before & after her MVD. I'm not sure of the exact date of broadcast but understand that it is very recent.

http://www.youtube.com/watch?v=XRbAkdlKS8U
TRIGEMINAL NEURALGIA ON TV NEWS
Sheri Neumoyer
Sheri Neumoyer
Thanks Lyn! The stories in these videos are heartbreaking, but it's so wonderful that people are finally listening to us. I hope you are having a good pain day!
April 12 at 11:01pm

My Friend, Brent's Facebook Status...

Brent Weichers Trigeminal Neuralgia, sometimes called "The Suicide Disease" and often described as the worst pain known to man. Awareness is needed! Please, if you have TN or know someone affected by it, or if you care for someone with it, Copy and Paste this to your wall. TN Family UNITE! We cannot suffer in silence anymore. This is for you Sheri


Janine Salvaggio-Devine
Janine Salvaggio-Devine
Thank you Brent for spreading the awareness ♥

 
Sheri Neumoyer
Sheri Neumoyer
Oh wow, Brent! Thank you!! *hug*
 
Brent Weichers
Brent Weichers
Yup, I had TN for over three years, two brain surgeries later in which I think it all got put back in the right spot I am all better.
It's going to be aired on TV! Finally there is something... *tears*
My first brain surgery was Microvascular Decompression, which is explained in this video. Mine failed due to being atypical(constant pain). But, I'm still hopeful about my second brain surgery because I'm still healing.

http://www.youtube.com/watch?v=YfKEvlqR14Y

John & James - "Tidewater Grain"

I just spoke on the phone with James for the first time in 7 years.  He gave me John's phone number as well, so I just left him a message.  James now has a record deal in the UK and has toured over there a couple times along with several other countries.  Plus, there is a Tidewater Grain reunion in the works.  What could be better than that?  We're planning to go out to dinner to catch up and I'm really excited.  These guys were such a big part of my life growing up and I'm so happy James sought me out!

Dave Mustaine

My friend Ryan, took this photo last night at the Megadeth, Testament and Exodus show in Scranton, PA.


You are already missed so much, Lee.

Leland C. Jennings Jr.

Photo
Leland C. Jennings, Jr., 57, of Middletown, DE died, Thursday, March 4, 2010 in Lewes De. He was born in Pennsville, NJ, the son of the late Leland G. Jennings and Gloria Scariato Jennings.

He was the Chief Historian and Director of Cultural Affairs for the State of Delaware. He obtained his Doctorate degree in History. Mr. Jennings played a major role in the State of Delaware refurbishment Project for Fort Delaware, as well as preservation and development of the Fort Miles in Lewes, Delaware. He served as member of the Fort Miles Historic Association and was also a member of the 5 Points Chapter O.E.S. # 13, in Newport Delaware.

Mr. Jennings was a member of the Masonic Lodge District # 59, Washington, PA and President of the Middletown Historical Society. The Production Manager for the Philadelphia Folk Art Festival for 30 plus years and organized and contributed to the Howard Pyle Pirate Festival for two years. He was an avid Revolutionary War Re-enactor and was the Production Manager for Blood Sweat and Tears for 14 years touring all over the world with them. He also traveled with the Bill of Rights Tour and Ornett Coleman. He was founder and owner of Exhibit Masters, a high-end Christmas Exhibit Décor installation and refurbishment Company.

Mr. Jennings is survived by his wife of 17 years, Linda K. Francis Jennings and two Step Children Dr. Kathryn Ann Berchtold and Albert Joseph Berchtold, III and three siblings Patrick, Susan, and Beth.

No Funeral services to be held at this time. A Celebration of life will be held at a later Date.

In lieu of flowers, contributions may be made to: Fort Miles Historical Assoc., C/O Dr. Gary D. Wray, 120 E. Wild Rabbit Run, Lewes, DE 19958.

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Proof That I'm Still Living

I have stolen a few pictures from my friends, giving proof of three out of the four outings I have participated in this year.



Me & My Baby Sister Teresa - 1/23/2010 @ Mojo 13.
My sister and I seeing "The Hated". The members of "The Hated" helped take care of me last summer after I had neurosurgery twice and then in the fall when I had cryosurgery. Apparently it's not punk rock, but they have become very dear friends.





"Walk Among Us" - "Misfits" Tribute Band - 2/13/2010 @ Mojo 13.
I LOVE this band! My friend, Ryan, who is also a member of "The Hated", let me turn the microphone stand around for the last song. It is extremely painful for me to sing right now, but it was worth it!





Pam & Me - 2/26/2010 @ Mojo 13.
Pam is so great! She's the singer for the punk band "Odd Squad".


Well, there you have it... the only other occasions I have been out of the apartment for are to go see my doctors. But, I'm still healing and I'm really trying to be patient with myself. I was able to be outside more often when the weather was warmer, but the cold and wind is brutal on my face. I have pushed myself to do a lot of things, like going out to the events pictured. Of course I feel very safe at those shows; I know the musicians very well and they are all aware of my condition. I need to be careful because sometimes the dysesthesia pain will become so intense that it will completely disorient me.

I guess I'll go back and hide under my private posts until my book is done. I really got myself wrapped up in a HUGE project...
Dr. Jannetta Receives Neurological Surgery Medal Of Honor




Dr. Jannetta’s groundbreaking research into the pathology and treatment of cranial nerve compression syndromes is widely regarded as one of the most important modern day breakthroughs in the field of neurological disease.
Compression of cranial nerves can lead to debilitating illnesses that affect sensation and motor function of the tongue, eyes and facial muscles. The most prominent cranial nerve compression syndrome is called trigeminal neuralgia (TN), a condition of chronic, often incapacitating facial pain. After identifying the cause of TN as compression of the fifth cranial nerve – the trigeminal nerve – by surrounding blood vessels, Dr. Jannetta developed a microvascular decompression procedure that has become the standard of surgical care worldwide.
The author of more than 400 scientific articles, abstracts and book chapters, Dr. Jannetta has earned several of his field’s most prestigious awards.
In 1983, he became one of the first neurosurgeons in the world to receive the Olivecrona Award, named after one of the fathers of modern neurosurgery. Presented by the Karolinska Institute in Sweden, home of the Nobel Prize Foundation, the award has been presented to just 18 neurosurgeons in its 29-year history.
In 2000, he was awarded the Fedor Krause Medal by the German Neurosurgical Society. Considered a top honor in the field, the medal is bestowed to physicians who have made significant contributions to medicine. Two years later, he received the Dr. Fritz Erler Award by Friedrich Alexander University and in 2006, he was awarded the Zulch Prize for medical research by the Max Planck Society for the Advancement of Science.
Over the past 30 years, more than 150 neurosurgeons have received their training under Dr. Jannetta, including many who have gone on to become national and international leaders in the field.
“Dr. Jannetta’s credentials are impeccable. His remarkable career as a surgeon, teacher and humanitarian have left an indelible mark on all those who have had the opportunity to work with and learn from him. Most importantly, his brilliance in the operating room and in the laboratory has had a profound impact on the lives of so many people who have benefited from the healing touch of his pioneering work. We are deeply honored to bestow this Medal to Dr. Jannetta for all of his wonderful accomplishments and for the significant contributions that he continues to make,” said Edward R. Laws, M.D., FACS, chair of the Medal of Honor Committee for the World Federation of Neurosurgical Societies and Director of the NeuroEndocrine/Pituitary Center at Brigham and Women’s Hospital.
Dr. Jannetta’s ongoing scientific pursuits include research into the role of vascular compression in essential hypertension – the most common form of high blood pressure – various other cardiac abnormalities and certain blood chemical disturbances.
“I am extremely honored to accept this award from such a respected scientific organization. What this recognition truly means is that my work has had a positive impact on the lives of people. Everything that I have accomplished in medicine I owe to the patients who have entrusted me with their well-being. They are the true pioneers in this story. That is what humbles me and what continues to inspire my dedication and drive to break additional clinical boundaries,” Dr. Jannetta said.

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